New South Wales (NSW) has established a registry for Motor Neurone Disease (MND), now classified as a ‘notifiable disease’ within the state. This designation requires healthcare professionals to report cases of MND, facilitating improved data collection and analysis. Experts believe the registry represents a crucial initial step towards understanding the causes of this incurable disease and potentially identifying preventative measures. The collected data will be instrumental in tracking the incidence of MND across NSW and supporting research efforts. This initiative aims to improve outcomes for individuals affected by MND and contribute to a broader national understanding of the condition. The registry will allow researchers to identify patterns and risk factors associated with MND, ultimately accelerating the search for effective treatments and, potentially, a cure.